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Standing up for Rare Disease and Rare Disorder
Posted on 9/30/14 at 5:28 pm
Posted on 9/30/14 at 5:28 pm
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This post was edited on 1/30/15 at 12:28 pm
6
Posted on 9/30/14 at 5:38 pm to MikeAllenWrites
I'm not clicking that.
Posted on 9/30/14 at 7:13 pm to BZ853
Who in the frick is MikeAllen?
Posted on 10/1/14 at 7:06 am to MikeAllenWrites
And who are you?
Posted on 10/1/14 at 7:23 am to MikeAllenWrites
How much do I have to give you to get my $24 mil currently being held in Nigeria?
Also, kudos to you for having all those disabilities and still being able to write a coherent paragraph. Perhaps you could give lessons to some of our resident rantards.
Also, kudos to you for having all those disabilities and still being able to write a coherent paragraph. Perhaps you could give lessons to some of our resident rantards.
This post was edited on 10/1/14 at 7:25 am
Posted on 10/1/14 at 10:53 am to crispyUGA
Hahah wow crispyUGA no idea about Nigeria, but thank you. I was thinking about taking down the post last night after a few comments. Anyway, I'm pretty sure all the new phones have voice to text recognition. Voice-to-text is a good friend of many others with writing disability, too. Writing a paragraph is easier then other stuff, but writing a book was tough. I hope other people here don't really associate this with all that Nigeria stuff. I'm just trying to raise awareness for rare disease and rare disorder.
Posted on 10/1/14 at 12:49 pm to MikeAllenWrites
frick yourself. Can you do that? I bet you can.
Posted on 10/1/14 at 3:31 pm to Pavoloco83
Hahah wow. It's an off-topic board, and that's a little harsh.
Posted on 10/1/14 at 3:35 pm to MikeAllenWrites
try this board mike LINK
the ot on tigerdroppings
they are not harsh like this board and you will get some serious replies
the ot on tigerdroppings
they are not harsh like this board and you will get some serious replies
This post was edited on 10/1/14 at 3:36 pm
Posted on 10/1/14 at 4:04 pm to MikeAllenWrites
quote:
Thanks MasCervezas
He's a good guy, best of luck
Posted on 10/1/14 at 5:29 pm to MikeAllenWrites
What does "Standing up for Rare Disease and Rare Disorder" mean? I read your post and perused the website but what is the goal of your group, other than awareness and contributions, of course?
Posted on 10/1/14 at 6:00 pm to Kentucker
Great question:
When I post the intent is always to inform people, to let people see ways one-of-a-kind minds live life. I didn’t grow up with a 12-step how to overcome GS guide. There may be patients and parents of patients suffering from rare disease and disorder posting on the site. When you’re fighting rare disease and rare disorder, it does help to know you’re not alone. That can come from sharing. A non-profit could lead to research into what trips up brains of those with visual/spatial and numerical processing problems and help develop better ways to help people with these problems. Really, I don’t want something like what happened with the LSAC situation to ever happen again. I wrote a book in February but I just feel a book isn’t enough. I’m happy about the book but I’m hoping a non-profit can address the issues in ways a book cannot.
When I post the intent is always to inform people, to let people see ways one-of-a-kind minds live life. I didn’t grow up with a 12-step how to overcome GS guide. There may be patients and parents of patients suffering from rare disease and disorder posting on the site. When you’re fighting rare disease and rare disorder, it does help to know you’re not alone. That can come from sharing. A non-profit could lead to research into what trips up brains of those with visual/spatial and numerical processing problems and help develop better ways to help people with these problems. Really, I don’t want something like what happened with the LSAC situation to ever happen again. I wrote a book in February but I just feel a book isn’t enough. I’m happy about the book but I’m hoping a non-profit can address the issues in ways a book cannot.
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