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Standing up for Rare Disease and Rare Disorder

Posted on 9/30/14 at 5:28 pm
Posted by MikeAllenWrites
Member since Feb 2014
35 posts
Posted on 9/30/14 at 5:28 pm
.


This post was edited on 1/30/15 at 12:28 pm
Posted by BZ853
Member since Aug 2013
1857 posts
Posted on 9/30/14 at 5:38 pm to
I'm not clicking that.
Posted by BillyBobPorkin
Stump Toe, Ar
Member since May 2014
1082 posts
Posted on 9/30/14 at 7:13 pm to
Who in the frick is MikeAllen?
Posted by dawg-fan#1
Athens, GA
Member since Nov 2012
1367 posts
Posted on 10/1/14 at 7:06 am to
And who are you?
Posted by crispyUGA
Upstate SC
Member since Feb 2011
15977 posts
Posted on 10/1/14 at 7:23 am to
How much do I have to give you to get my $24 mil currently being held in Nigeria?


Also, kudos to you for having all those disabilities and still being able to write a coherent paragraph. Perhaps you could give lessons to some of our resident rantards.
This post was edited on 10/1/14 at 7:25 am
Posted by MikeAllenWrites
Member since Feb 2014
35 posts
Posted on 10/1/14 at 10:53 am to
Hahah wow crispyUGA no idea about Nigeria, but thank you. I was thinking about taking down the post last night after a few comments. Anyway, I'm pretty sure all the new phones have voice to text recognition. Voice-to-text is a good friend of many others with writing disability, too. Writing a paragraph is easier then other stuff, but writing a book was tough. I hope other people here don't really associate this with all that Nigeria stuff. I'm just trying to raise awareness for rare disease and rare disorder.
Posted by Pavoloco83
Acworth Ga. too many damn dawgs
Member since Nov 2013
15347 posts
Posted on 10/1/14 at 12:49 pm to
frick yourself. Can you do that? I bet you can.
Posted by MikeAllenWrites
Member since Feb 2014
35 posts
Posted on 10/1/14 at 3:31 pm to
Hahah wow. It's an off-topic board, and that's a little harsh.
Posted by MasCervezas
Ocean Springs
Member since Jul 2013
7958 posts
Posted on 10/1/14 at 3:35 pm to
try this board mike LINK

the ot on tigerdroppings

they are not harsh like this board and you will get some serious replies

This post was edited on 10/1/14 at 3:36 pm
Posted by MikeAllenWrites
Member since Feb 2014
35 posts
Posted on 10/1/14 at 4:01 pm to
Thanks MasCervezas
Posted by Vols&Shaft83
Throbbing Member
Member since Dec 2012
70044 posts
Posted on 10/1/14 at 4:04 pm to
quote:

Thanks MasCervezas



He's a good guy, best of luck
Posted by Kentucker
Cincinnati, KY
Member since Apr 2013
19351 posts
Posted on 10/1/14 at 5:29 pm to
What does "Standing up for Rare Disease and Rare Disorder" mean? I read your post and perused the website but what is the goal of your group, other than awareness and contributions, of course?
Posted by MikeAllenWrites
Member since Feb 2014
35 posts
Posted on 10/1/14 at 6:00 pm to
Great question:

When I post the intent is always to inform people, to let people see ways one-of-a-kind minds live life. I didn’t grow up with a 12-step how to overcome GS guide. There may be patients and parents of patients suffering from rare disease and disorder posting on the site. When you’re fighting rare disease and rare disorder, it does help to know you’re not alone. That can come from sharing. A non-profit could lead to research into what trips up brains of those with visual/spatial and numerical processing problems and help develop better ways to help people with these problems. Really, I don’t want something like what happened with the LSAC situation to ever happen again. I wrote a book in February but I just feel a book isn’t enough. I’m happy about the book but I’m hoping a non-profit can address the issues in ways a book cannot.
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