tooshea8

Prayers sent!

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an epic OT thread where the OP questioned if life would be better with Downs

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My youngest daughter has Down Syndrome. She is also a cancer survivor, at just the age of 3. There is a saying amongst the parents of kids with Down Syndrome. We refer to ourselves as “The Lucky Few”. We consider ourselves that because of the overwhelming joy that those children bring into the world. We have 3 children, and we love them all dearly, but the love given by our youngest towards EVERYONE she meets is simply indescribable. Children with Down Syndrome truly are Heaven’s gift to us, as they are angels walking amongst us. The sincere love and happiness I get from my youngest makes your heart overflow with joy. We consider ourselves to be blessed beyond measure.

Pre-Daytona model 6238

Walter Payton

I added an update in the original post, for those who have been following and praying.

I’m humbly asking for prayers for my 17 month old daughter. We found out on Friday that she has been diagnosed with AML, a form of leukemia. It’s a diagnosis that no parent ever wants their child to receive. We go to discuss treatment options on Tuesday, but until then, we are left wondering about the unknown, which is frightening enough. I can’t imagine what the future holds for her, but I am praying that she responds quickly from the treatment. I ask that you help me by praying for her. Thank you in advance.




Update: We were told by her oncologist that she will need 6 months of inpatient treatment. It was quite the shock to us that our 17 month old will spend the next 6 months in the hospital for chemo, but we will do whatever is necessary to get her well. She started her chemo one week ago today, and we are now at the wait and watch stage, where her blood counts will expectedly plummet, which will put her at a great risk of infection. Her counts should hit rock bottom at about the 10-14 day mark. After that, her counts should begin to recover over the 14 days following that. When her numbers are acceptably high enough, she’ll begin another treatment. She’s in very high spirits so far, and you wouldn’t know just how sick she is by looking at her, but we’ve been told the worst is yet to come. The outpouring of support from our family, friends, and neighbors has been overwhelming. We know God has his plan, and we must follow the path that He has laid out for us. We just ask for continued prayers for little Harper. Thank you so much, in advance.

My father, RIP, was one of the “recipients” of said “Agent Orange giveaway” benefits, and for good reason. The best man I’ve ever known developed diseases not inherent to his lifestyle or familial history. My father spent his entire adult civilian life as an RT, treating and caring for countless patients with respiratory disorders. He retired, and was soon thereafter diagnosed with pulmonary fibrosis. This is a disease that, without a lung transplant, is ultimately a death sentence. He slowly, but surely, spiraled downward, until he caught Covid, and it was his end. My Dad had so many diagnoses that boggled the mind. Many of his doctors could only attribute them to Agent Orange exposure. So, quite frankly, I take offense to the mere idea that there can be a term such as “Agent Orange Giveaway”. It’s disrespectful, at the very least, to our veterans who gave their all, in a war they were commanded to participate in, but were shunned upon on their arrival back home.

Integral, in the fact that if you want you or you’re family members intubated.....

The surgeon in the first scene is a vile human being who doesn’t give a CRAP about his patients. Believe me, I would know. He is a prima donna whose partners don’t even respect him.

Now, take in mind, I fully expect to pay for the food/and or drink ordered with a generous tip, but I’m more talking about even having the availability of the room service without having to pay an extra $1000.