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re: Kidney Failure, unknown cause. Dialysis in future.
Posted on 4/7/24 at 12:18 pm to Napoleon
Posted on 4/7/24 at 12:18 pm to Napoleon
My dad is in the ICU intubated right now, he’s been on dialysis for over 2 years. He’s in the ICU because he collapsed at home and couldn’t breathe. They think he has aspirated pneumonia.
I can tell you he hated dialysis, he got set up to do it at home which has been terrible for him. Go to a clinic and do it, don’t do it at home. He’s constantly in and out of the hospital because of fluid building up in his lungs from him either procrastinating dialysis bc he hates or it bc they keep getting his dry weight wrong. His machine doesn’t work right half the time, I’m constantly over there helping swap parts out on it & they’re constantly calling the 1800 number trying to get the damn thing to work
Prayers for my dad y’all
Edit: the brand name on the machine is nx stage
I can tell you he hated dialysis, he got set up to do it at home which has been terrible for him. Go to a clinic and do it, don’t do it at home. He’s constantly in and out of the hospital because of fluid building up in his lungs from him either procrastinating dialysis bc he hates or it bc they keep getting his dry weight wrong. His machine doesn’t work right half the time, I’m constantly over there helping swap parts out on it & they’re constantly calling the 1800 number trying to get the damn thing to work
Prayers for my dad y’all
Edit: the brand name on the machine is nx stage
This post was edited on 4/7/24 at 3:04 pm
3
Posted on 4/7/24 at 12:25 pm to Shite_kicker
What machine is your dad using?
We loved in home dialysis over the clinic big time.
We loved in home dialysis over the clinic big time.
This post was edited on 4/7/24 at 12:28 pm
Posted on 4/7/24 at 12:31 pm to Shite_kicker
sorry for what your dealing with as well Shite - I really wish you and yours the best
Posted on 4/8/24 at 10:50 pm to Shite_kicker
A few thoughts...
You are very young (for renal failure). Long term dialysis is death procrastinated. You only have so many access options for a dialysis catheter and eventually you run out.
Dialysis is time consuming and affects quality of life. 3 days week at clinic for multiple hours in the company of people you dont know makes it hard to have a life. Think work, vacation, camping etc....
Strike while the iron is hot. You have live donors that are willing. Start the testing asap and push for that treatment option. Being on the donor list takes awhile and you have to be sicker. Your goal should be NOT to get sicker. Plus people have a sympathetic response now but where will they be in 5 years if you need one and one is not available? And not to be morbid but the one that matches you genetically could die in an auto accident tomorrow. Start the process now. You have a lot of life left.
Wishing you the best and sending good juju your way.
Shite_kicker- "the brand name on the machine is nx stage" That sucks for your family. I love nxstage, it's the best option for CRRT and had high hopes it would free people from the chains of dialysis clinics. Hate to hear in practice patients are struggling more with it at home.
You are very young (for renal failure). Long term dialysis is death procrastinated. You only have so many access options for a dialysis catheter and eventually you run out.
Dialysis is time consuming and affects quality of life. 3 days week at clinic for multiple hours in the company of people you dont know makes it hard to have a life. Think work, vacation, camping etc....
Strike while the iron is hot. You have live donors that are willing. Start the testing asap and push for that treatment option. Being on the donor list takes awhile and you have to be sicker. Your goal should be NOT to get sicker. Plus people have a sympathetic response now but where will they be in 5 years if you need one and one is not available? And not to be morbid but the one that matches you genetically could die in an auto accident tomorrow. Start the process now. You have a lot of life left.
Wishing you the best and sending good juju your way.
Shite_kicker- "the brand name on the machine is nx stage" That sucks for your family. I love nxstage, it's the best option for CRRT and had high hopes it would free people from the chains of dialysis clinics. Hate to hear in practice patients are struggling more with it at home.
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